Living Life to the Fullest with Ehlers-Danlos Syndrome: Guide to Living a Better Quality of Life While Having EDS Hardcover – July 17, 2015
Author: PT Kevin Muldowney ID: 1478758880
Hardcover: 400 pagesPublisher: Outskirts Press (July 17, 2015)Language: EnglishISBN-10: 1478758880ISBN-13: 978-1478758884 Product Dimensions: 8.5 x 0.9 x 11 inches Shipping Weight: 1.6 pounds (View shipping rates and policies) Best Sellers Rank: #22,934 in Books (See Top 100 in Books) #3 in Books > Health, Fitness & Dieting > Diseases & Physical Ailments > Genetic #15 in Books > Medical Books > Allied Health Professions > Physical Therapy #36 in Books > Health, Fitness & Dieting > Exercise & Fitness > Injuries & Rehabilitation
This book is for you if:
-like most of us, you have only been able to find physical therapists who were ineffective, made your joints more unstable or even severely injured you
-you would like your money to go toward a compassionate physical therapist who believes EDSers and believes IN EDSers. You’ll be proactively helping prevent the deterioration of your health, instead of relying on healthcare professionals who are either too dismissive or who give up and tell you you’ll never be active again
-your EDS is severe enough to limit your physical abilities in any way
-you are in any amount of pain that you’d like reduce
This book was written by my physical therapist, Kevin Muldowney, who is one of the only PTs in the country to specialize in Ehlers-Danlos. (Seriously, EDSers drive in from out of state to see him.) Unlike physical therapists who give you a "cookie cutter" set of exercises designed for people with normal collagen, he became an expert at treating EDS bodies by systematically examining a substantial number of EDSers over long time periods, as he slowly added in exercises he developed specifically with EDS biomechanics in mind. He has an extremely high success rate of decreIDg pain and disability in almost his EDS patients (most of whom I know personally). You can bring this book to any "manual physical therapist" in the country, and it will teach them exactly how to treat you. A lot of the pain reduction occurs slowly over time, but some strong, temporary relief happens immediately with the manual corrections of your subluxations that this book outlines (it’s MUCH safer than chiropractors if your PT is well-trained). This is a long exercise regimen, but it builds slowly and works WITH you and your body. Itreally pays off in the long run–your joints will be more stable than they have been in years!
I have been following this protocol for over a year and a half and at the age of 65, the time I have put into it has been totally worth it. On my good days, the sacrum holds and the up slips have gone away. It takes time, determination and commitment to follow up and do the exercises but they are not hard and do in time strengthen your muscles, thus allowing you to hold better. This book is not meant for you to take home and do yourself. You need to find a willing PT that will use the book as the guide and watch you try each new step and then check your body to be sure you held while doing the workout. It is safe, gentle, must be geared to your body and it’s needs. I am thrilled with my results and love that this is allowing me to be proactive with my life!!!
I am one of those people who have driven out-of-state to see Kevin Muldowney. I was desperate for relief from the pain and shopping for a wheelchair when I stumbled across an online presentation he had given. It was the first spark of hope I had felt in a long time. Kevin was able to identify that I had a dislocated sacrum and bilateral upslips shortly after arriving for my first visit and was able to adjust it right then and there. I painfully limped in hanging on to my husband’s arm and walked out on my own. It felt like a miracle because I had been walking around like that for over a year and none of the many medical professionals I had been to had any idea what to do. It really works!! If you have EDS and are looking for answers, I highly recommend his book.
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